The Hidden Cost of Masking: Autism, Identity and Authenticity with Dr. Amy Pearson

In this conversation, Dr. Amy Pearson shares her personal and professional journey in autism research, discussing her experiences as a late-diagnosed autistic individual and the impact of her lived experience on her research. She explores the challenges of navigating the academic landscape as an autistic researcher, the importance of neurodiversity affirming practices, and the need for a shift from deficit-based models to a more inclusive understanding of autism. The discussion highlights the ethical considerations in autism research and the significance of aligning research with the values of the autistic community. This conversation delves into the perceptions of autistic individuals, particularly focusing on the experiences of non-speaking individuals and the biases that exist within neurotypical perspectives. It explores the complexities of family dynamics, the importance of support for individuals with high needs, and the reflections on ABA tutoring experiences. The discussion also addresses the concept of masking in autism, its implications, and the challenges of navigating social expectations while striving for authenticity. In this conversation, Amy Pearson and Ben Reiman explore the evolving understanding of authenticity, the significance of stimming in autistic identity, and the complexities of relationships within the autistic community. They discuss misconceptions surrounding autistic intimacy, the portrayal of neurodivergent relationships in media, and the critical issue of intimate partner violence faced by autistic individuals. The conversation emphasizes the need for a deeper understanding of autistic experiences and the importance of fostering acceptance and support in relationships. In this conversation, Amy Pearson discusses the complexities of autistic experiences, particularly in relation to interpersonal violence, emotional well-being, and the importance of support systems in research. She highlights the need for awareness of red flags in relationships, the intersection of autism with menopause, and the influence of key figures in autism research. The discussion emphasizes the importance of understanding and validating autistic experiences while advocating for systemic changes to improve the lives of autistic individuals

 

 

Watch on YouTube: https://youtu.be/h9UUG0zr1f4

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Links

Amy Pearson 

https://www.linkedin.com/in/amy-pearson-359b83303/

https://www.durham.ac.uk/staff/amy-pearson/

Links and Resources

Authoring Autism by M. Remi Yergeau 

https://www.dukeupress.edu/authoring-autism

Dr. Pearson's Amazing Colleagues Mentioned

Kieron Rose

https://theautisticadvocate.com/

https://www.linkedin.com/in/kieran-rose-38574b55/

Felicity Sedgewick

https://www.linkedin.com/in/felicity-sedgewick-32a55015b/

Sarah Douglas

https://www.linkedin.com/in/sarah-douglas-9a57951b6/

Nicole Renehan

https://www.durham.ac.uk/staff/nicole-renehan/

Sarah Cassidy

https://www.nottingham.ac.uk/psychology/people/sarah.cassidy

Damien Milton

https://www.kent.ac.uk/school-of-psychology/tizard/people/1419/milton-damian

Sarah King

https://www.saraking.online/research

Krysia Waldock

https://www.linkedin.com/in/krysia-waldock/

Liz Pellicano

https://profiles.ucl.ac.uk/47716-elizabeth-pellicano

Research Discussed

Pearson A, Rose K, Mitchell A, et al. “It’s Not a Physical Prison but You Can’t Get Out.” How Autistic Adults Make Sense of the Experience of Intimate Violence and Abuse. Autism in Adulthood. 2026;8(3):360-372. doi:10.1089/aut.2024.0145